Monday, 30 April 2018

Neurogenic Pain vs Common Pain

A simple graphic to compare Neurogenic Pain vs what might be called 'Other Pain' or 'Common Pain' or perhaps 'Everyday Pain' and their response to analgesics (pain medicine).

Regular Pain when treated with analgesics

Neurogenic Pain treated with the same analgesics

So how do you relieve burning Neurogenic pain?  In short you don't.  You grit your teeth and learn to live with it!

To my knowledge there are only four drugs which currently claim to alleviate Neurogenic pain.
  1. Gabapentin
  2. Nortriptyline
  3. Amitryptyline
  4. Lyrica (Pregabalin)
Are there any others under investigation, development or under restricted use?

From my personal experience (and I imagine every injury is unique), the above listed drugs may reduce my pain by perhaps 10% at best.  And I've tried them all.

Now if someone burns you with a lit cigarette 100 times an hour then reduces the burn to 90 times an hour, will you accept the kind gesture with gratitude?  Absolutely!  But ask yourself, is the quality of your life substantially improved?

I continue to grasp at straws...

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Friday, 27 April 2018

Permobil M300 - It Runs!

Anyone following this blog knows of my persistent problems with the Permobil M-300 motorized wheelchair.  Virtually every part of it had to be replaced  starting within months of purchasing it and with additional problems occurring every year thereafter.

Both motors died within months of each other and a replacement motor had to be returned as it failed to operate properly.  The electronic 'brain' or control unit also died and required replacement.

Still with all this done, one Permobil wheelchair motor would periodically cut out - that is, would not receive power.  This usually occurred while I was attempting to reverse.  With one wheel powerless, I could only turn in circles about the stationary wheel.

My wheelchair service providers could not determine the cause and Permobil U.S. headquarters were less than helpful in resolving the situation.  They required the error code displayed on the joystick module to determine the problem but there was no error code displayed.

It became a "Who's on First?" Abbot & Costello routine between my service provider and Permobil U.S.  "What's the Code?"  "There is no code!"  "Then you don't have a problem!"  "But the chair won't run!."  "Then what's the code?"  "There is no code." "Then the chair is not broken."  "But it won't run!"  "Then what's the code?...

The temporary solution my service provider found was to unplug the wiring harness connector from the motor not receiving power, wait a few seconds and then to reconnect the connector.  It seemed to solve the problem temporarily - like rebooting a computer.  Still the problem remained as it would cut out every few days.

The good news is that it seems to have corrected itself for about the last ten times I attempted to use the Permobil, it has run without any problems.

Still, it remains unsettling for if a specific problem was not found and a specific solution found, I operate the chair hesitantly, waiting for the next occurrence of the same problem.  It doesn't ease the mind when something fixes itself.  Why and how long are questions that come to mind.

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